I see hemophilia as something that has inspired me to do more, to enjoy my wonderful family and to live as an active member of society.
— DANIEL KRAUS: Father. Rabbi. Hemophilia Advocate.
"I have been asked many times what the negatives of living with hemophilia are. I find this question very presumptive. In fact, I see hemophilia as something that has inspired me to do more, to enjoy my wonderful family and to live as an active member of society.
"I have been involved with the hemophilia community over the years and was asked to join the board of a local chapter in New York in 2013. As someone with a bleeding disorder, I believe it is important for me to advocate for good care and the benefits of prophylactic treatment. I want to be an example for others with hemophilia. I think that it is very important for me to give back to the community that I have benefited from.
"I believe it's all about how you approach hemophilia and how you relate to it. I view hemophilia not as something that can inhibit me but as something that can benefit me. Sure, I have had painful bleeds, but I look at my hemophilia as a characteristic of mine, like being fat or thin, tall or short.
"I tell others with hemophilia to approach life with vigor and to be the best person that they can be. I tell them that they shouldn't see their hemophilia as a brick wall; after all, even though I have to take extra precautions when doing activities and traveling, I don't let my hemophilia stand in the way, and I don't let it define me.
"I found my True Identity by taking care of myself and being active in the hemophilia community."
Not all activities are appropriate for all people. Be sure to consult your physician or treatment center before beginning any exercise program or participating in sporting activities. If an injury occurs, contact your physician or treatment center immediately for the appropriate treatment.
You should be trained on how to do infusions by your hemophilia treatment center or your healthcare provider.
source : http://www.yourtrueid.com/real-stories/daniel.html
No comments:
Post a Comment